'What a wonderful site you have'
‘Your website has been so helpful and has put my mind at ease to know that I am not mad and that I’m not making up what happens.’
Who are we?
We are a group of healthcare prof-essionals interested in developing effective treatments for non-epileptic attacks. Our group consists of neurol-ogists, psychologists and psycho-therapists. Between us we have many years of experience of working with patients with NEAD.
About this site
This site is designed to provide patients diagnosed with Non-Epileptic Attack Disorder (NEAD) and their families with more information about the disorder. Some doctors use different names for non-epileptic attacks (NEAs), for instance psychogenic seizures, dissociative seizures, conversion seizures or pseudoseizures. These names describe the same condition in which attacks occur without a clear medical cause, so the information on this website should still be relevant.
This website is not about other nonepileptic attacks explained by obvious medical causes such as fainting, transient ischaemic attacks or blackouts related to low blood sugar.
What is on this site?
From our experience of meeting people with non-epileptic attack disorder (NEAD), we know that when people first receive the diagnosis they are often very confused. People may have thought that they have epilepsy for many years and do not understand what the new diagnosis means. Patients often hear a short explanation of NEAD from their doctor and are then sent away with no further support.
We hope that this site will provide you with the most up-to-date information about what NEAs are, what causes them, and what the best treatments are.
We also aim to provide you, your family and friends the best advice on what you can do to help yourself.
The site contains many self-help ideas and suggestions about what you should or shouldn't try doing. We hope that these will help you to feel in control of your disorder and help you to find the best treatment possible.